Three-year-old Sebastian Moroney beating the odds against a rare genetic condition was killed by Covid – as his devastated mother explains how the virus ‘ripped through’ his frail body

Three-year-old Sebastian Moroney was born with a rare genetic disease called Niemann-Pick, which impacts the body’s ability to metabolise lipid, resulting in a build-up of fat within a person’s cells.

Sebastian Moroney (pictured) was defying the odds against a degenerative condition but died after he caught Covid - with his mother explaining how the virus quickly 'ripped through him'

He was born with the Type A version of the disease, which typically manifests in people when they are infants. Its carriers do not often live beyond a few years.

His mother, Jordanna, said doctors gave him a grim diagnosis.

“He was expected to live for eight months. He fought and we gave him the best care we could,” the Campbelltown mother said.

“He was terminal … but he defied predictions; he was alive and interacting with the people around him. Until he got COVID.”

The three-year-old did get to see the birth of his little sister Liora (pictured together) before his death

Sebastian tested positive for COVID-19 on December 23 and had to isolate with a parent for 10 days to protect his two-week-old sister.

He spent his third birthday in isolation and died on Friday.

“We’re so devastated. He was such a sweet little boy, and he fought so hard for so long,” Ms Moroney said.

Although Sebastian’s official cause of death was both Niemann-Pick and COVID-19, according to his mother, he was not counted among the nine people who died in the latest reporting period.


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